Neurofibromatosis Type 1

general

A rare genetic condition that causes brown spots and tumors on the skin, freckling in skin areas not exposed to the sun, tumors on the nerves, and developmental changes in the nervous system, muscles, bone, and skin.

Centers

Active Trials

$56M

Cancer Funding

Specific Cancer Types(3)

Name	Centers	Active Trials
Low Grade Glioma of Brain With Neurofibromatosis Type 1	8	8
Recurrent Neurofibromatosis Type 1	4	4
Refractory Neurofibromatosis Type 1	4	4

Top Centers for Neurofibromatosis Type 1(62)

Ranked by research excellence score (trials · grants · publications). Methodology →

#	Center	Research Tier	Active Trials	Cancer Funding	Score
1	Masonic Cancer CenterMinneapolis, MN NCI Comprehensive High-Volume Research Center	High-Volume Research Center	2	$6M	79.4
2	Holden Comprehensive Cancer CenterIowa City, IA NCI Comprehensive High-Volume Research Center	High-Volume Research Center	2	$3M	78.9
3	Stanford Cancer InstitutePalo Alto, CA NCI Comprehensive High-Volume Research Center	High-Volume Research Center	3	$3M	78.3
4	Simmons Comprehensive Cancer Center UT Southwestern Medical CenterDallas, TX NCI Comprehensive High-Volume Research Center	High-Volume Research Center	2	$2M	77.7
5	Dan L Duncan Comprehensive Cancer Center at Baylor College of MedicineHouston, TX NCI Comprehensive High-Volume Research Center	High-Volume Research Center	2	$2M	76.6
6	Vanderbilt-Ingram Cancer CenterNashville, TN NCI Comprehensive High-Volume Research Center	High-Volume Research Center	2	$237K	74.8
7	Dana-Farber Cancer InstituteBoston, MA NCI Comprehensive Active Research Program	Active Research Program	3	—	68.4
8	Sylvester Comprehensive Cancer CenterMiami, FL NCI Clinical Active Research Program	Active Research Program	3	—	68.4
9	Boston University Cancer CenterBoston, MA Active Research Program	Active Research Program	3	—	68.4
10	University of Cincinnati Cancer CenterCincinnati, OH Active Research Program	Active Research Program	6	—	68.4
11	Memorial Sloan Kettering Cancer CenterNew York, NY NCI Comprehensive Active Research Program	Active Research Program	5	—	59.9
12	Duke Cancer InstituteDurham, NC NCI Comprehensive Active Research Program	Active Research Program	2	—	59.9
13	The University of Chicago Medicine Comprehensive Cancer CenterChicago, IL NCI Comprehensive Active Research Program	Active Research Program	2	—	59.9
14	University of Colorado Cancer CenterAurora, CO NCI Comprehensive Active Research Program	Active Research Program	5	—	59.9
15	The University of Arizona Cancer CenterTucson, AZ NCI Comprehensive Active Research Program	Active Research Program	2	—	59.9
16	Medical College of Wisconsin Cancer CenterMilwaukee, WI Active Research Program	Active Research Program	2	—	59.9
17	University of Illinois Cancer CenterChicago, IL Active Research Program	Active Research Program	5	—	59.9
18	UAMS Winthrop P. Rockefeller Cancer InstituteLittle Rock, AR Active Research Program	Active Research Program	2	—	59.9
19	Houston Methodist Dr. Mary and Ron Neal Cancer CenterHouston, TX Active Research Program	Active Research Program	2	—	59.9
20	Cancer Center at IllinoisUrbana, IL Active Research Program	Active Research Program	3	—	59.9
21	Livestrong Cancer InstitutesAustin, TX Active Research Program	Active Research Program	2	—	59.9
22	Loma Linda University Cancer CenterLoma Linda, CA Active Research Program	Active Research Program	2	—	59.9
23	BC CancerVancouver, BC Active Research Program	Active Research Program	2	—	59.9
24	Fred & Pamela Buffett Cancer CenterOmaha, NE NCI Clinical Active Research Program	Active Research Program	1	$742K	57.9
25	Laura and Isaac Perlmutter Cancer Center at NYU Langone HealthNew York, NY NCI Comprehensive Active Research Program	Active Research Program	1	$432K	57.3
26	University of Virginia Cancer CenterCharlottesville, VA NCI Comprehensive Active Research Program	Active Research Program	1	$211K	56.2
27	Indiana University Melvin and Bren Simon Comprehensive Cancer CenterIndianapolis, IN NCI Comprehensive Active Research Program	Active Research Program	—	$16M	48.5
28	Siteman Cancer CenterSt. Louis, MO NCI Comprehensive Active Research Program	Active Research Program	—	$7M	47.9
29	Hollings Cancer CenterCharleston, SC NCI Clinical Active Research Program	Active Research Program	—	$2M	45.0
30	Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins UniversityBaltimore, MD NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
31	UNC Lineberger Comprehensive Cancer CenterChapel Hill, NC NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
32	Mayo Clinic Comprehensive Cancer CenterRochester, MN NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
33	Yale Cancer Center Yale School of MedicineNew Haven, CT NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
34	Herbert Irving Comprehensive Cancer CenterNew York, NY NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
35	The University of Texas MD Anderson Cancer CenterHouston, TX NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
36	The Ohio State University Comprehensive Cancer Center - James Cancer Hospital & Solove Research InstituteColumbus, OH NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
37	University of Wisconsin Carbone Cancer CenterMadison, WI NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
38	Comprehensive Cancer Center St. Jude Children’s Research HospitalMemphis, TN NCI Comprehensive Active Research Program	Active Research Program	2	—	41.8
39	UF Health Cancer InstituteGainesville, FL NCI Clinical Active Research Program	Active Research Program	1	—	41.8
40	Roswell Park Comprehensive Cancer CenterBuffalo, NY NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
41	VCU Massey Comprehensive Cancer CenterRichmond, VA NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
42	Cleveland Clinic Cancer CenterCleveland, OH Active Research Program	Active Research Program	1	—	41.8
43	Sidney Kimmel Comprehensive Cancer Center at JeffersonPhiladelphia, PA NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
44	Dartmouth Cancer CenterLebanon, NH NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
45	Rutgers Cancer InstituteNew Brunswick, NJ NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
46	University of Hawai‘i Cancer CenterHonolulu, HI NCI Clinical Active Research Program	Active Research Program	1	—	41.8
47	University of New Mexico Comprehensive Cancer CenterAlbuquerque, NM NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
48	Karmanos Cancer InstituteDetroit, MI NCI Comprehensive Active Research Program	Active Research Program	1	—	41.8
49	Penn State Cancer InstituteHershey, PA Active Research Program	Active Research Program	1	—	41.8
50	Mayo Clinic Comprehensive Cancer Center, FloridaJacksonville, FL Active Research Program	Active Research Program	1	—	41.8
51	Mayo Clinic Comprehensive Cancer Center, ArizonaScottsdale, AZ Active Research Program	Active Research Program	1	—	41.8
52	The University of Vermont Cancer CenterBurlington, VT Active Research Program	Active Research Program	1	—	41.8
53	University of Puerto Rico Comprehensive Cancer CenterSan Juan, PR Active Research Program	Active Research Program	1	—	41.8
54	Upstate Cancer CenterSyracuse, NY Active Research Program	Active Research Program	1	—	41.8
55	Tampa General Hospital Cancer InstituteTampa, FL Active Research Program	Active Research Program	1	—	41.8
56	Louisiana Cancer Research CenterNew Orleans, LA Active Research Program	Active Research Program	1	—	41.8
57	Abramson Cancer Center of the University of PennsylvaniaPhiladelphia, PA NCI Comprehensive		—	—	27.8
58	City of Hope Comprehensive Cancer CenterDuarte, CA NCI Comprehensive		—	—	27.8
59	Case Comprehensive Cancer CenterCleveland, OH NCI Comprehensive		—	—	27.8
60	Cedars-Sinai CancerLos Angeles, CA		—	—	27.8
61	Princess Margaret Cancer CentreToronto, ON		—	—	27.8
62	University of Texas Medical Branch Cancer CenterGalveston, TX		1	$15M	—

Research tier badges reflect trial volume, NIH grant funding, and publication impact — not clinical outcomes or patient satisfaction. Learn about our methodology →